I feel like a little kid when it snows. I run back and forth to the window to see if it's sticking and how hard it's snowing. We hardly ever get snow that actually sticks on the ground here on the "Wet Coast" so it's a novelty. We used to get snow when I was a kid. I remember walking to school in knee deep snow (yes I know I was shorter then!). Back then girls had to wear skirts or dresses to school but on snow days we wore snow pants over our dresses. I was a tomboy so I loved being able to wear snow pants to school. Now we hardly ever get any kind of snow. I miss it.
I've been doing ok just finding myself very tired at the end of the day. Working 40 hours a week seems to be all I'm really able to accomplish these days and when I get home I just rest. Most days I'm in bed and asleep before 9 and last night it was 7:30. Yesterday though I had a wicked headache that just got worse as the day went on. By the time I got home it was making me feel ill. I laid down before dinner and then right after dinner I was in bed and asleep. I woke up off and on over the night and still had the damn headache. I was up at 5 this morning and was figuring out how I was going to get down 2 Acetaminophen when I suddenly realized what was going on.
When we went shopping last week I got a case of caffeine free diet pop to try and see if I like it in preparation of maybe not being able to have caffeine if I go back onto treatment. I have also stopped making coffee in the morning before I go to work and have hot chocolate when I get there. So yesterday I had no coffee and no caffeine in my pop and I was in caffeine withdrawal! I had made coffee and had two cups when Ryan wandered out on his way to work with me still holding the bottle of Acetaminophen and looking for something I could choke them down with. He looked at me for a sec and said, "I have candy coated tylenol" !! So he went and got them for me and I managed to get a couple of them down with some apple sauce. I am terrible taking pills and need to have food with them or as soon as they hit my mouth I start to gag and it's game over. By the time I got to work the headache was gone. I'm going to have to wean myself slowly.
Two weeks till the big doctor appointment and I'm getting nervous every time I think about it. Everything is sorta in limbo until I know what is going to happen. I'll be glad to go though and get it over and done with. Then at least I'll know what's happening.
The kids are all busy and doing well. Josh has gone into panic mode now that he and his girlfriend have broken up for the third or fourth time in four years. She wants a commitment and he wouldn't give one. Now she is heading off to India for the 3rd time for two months and will be travelling with a fellow she knows from Ireland. That was enough to really get Josh thinking and he is majorly stressed and ready to tell her he wants her to move in when she gets back. We'll see how this goes. Personally I really like her and would be very happy to see him settle down. As with all moms, all I really want or care about is that he is happy. He is 32 now and I would hate to see him old and lonely.
My chemo buddy seems to be doing well. I got my patient report and he is in week 32 of 39 weeks of treatment. I sure hope he continues to do well and beats this cancer he has. From all my caringbridge kids that I read about, rhabdomyosarcoma seems to be a particularly vicious form of cancer. It would sure be nice if they could find a better treatment for these cancers that kill so many. As in the case of Hep C, the treatment seems very harsh and for a young child it has to be so much worse.
Work is going well and I've been working on the format for our catalog and continuing work on the webpage. It is a never ending job so it's a good thing I enjoy it! It's one of those things that you sit intending to spend an hour or two and before you know it 6 or 8 hours have gone by unnoticed. With the site for work we have it spread over the site the website provider gives us, 3 of my personal webspaces and two of Khushwinders! Pictures take up a lot of space and we have a ton of pictures on the site. Some days I have open three different spaces and am trying to remember which I am trying to hyperlink to at any given time. Jude just put in a bid on a big new development in New Westminster that would be very nice to get. We're keeping our fingers crossed.
2 comments:
Hi Elizabeth Anne,
Wow, the photo from your last post is absolutely incredible. It is beautiful there!
Waiting for the doctors appointments, especially the ones that define our upcoming existence, really is frustrating. Jane put it very nicely on her blog, I thought, when she said that with hepc, we become quite accustomed to "delayed gratification". Hope the next two weeks pass quickly for you.
Rhabdomyosarcoma is a terrible cancer. I'm glad to hear your chemo buddy seems to be doing okay. Quite right about how terrible it is for a child to have to go through that type of treatment - really puts our situation in some perspective.
You sound busy with family and work. As always, you seem positive and motivated to get through things in the best way possible. So inspiring!
Sue
Ditto what Sue wrote — beautiful photo.
Lack of caffeine will do that. I've been off it for a month or two now, and so I was smiling as I read your post. For me, though, a little confusion beats increased anxiety.
Good luck making the to-treat-again-or-not-to-treat-again decision. I know it can be difficult. I've made my choice for now, but I can't say I won't change my mind at some future point.
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